Max's procedure has been put on hold due to his retching subsiding. We, along with the surgeon felt that it was best not to rock the boat when he was doing so well. We are literally down to 1 retch a day if that - we have not changed anything so not quite sure why they have stopped.....but its great!
Max's immune system seems to be coping much better with colds etc now too, the last cold hardly affected him at all. He has had a second bout of tonsillitis and ear infections but again has managed to fight them off no problem with a course of penicillin. We have been going to playgroup now almost routinely and so far so good on the infections front! We are thinking of putting him to nursery 1 day a week so we just need to find the right one now and more importantly one where they can do his tube feeds. I think I need a break from Max and he definitely needs a break from me!
I had my friend Melissa round last Friday night and Max literally took his first steps from me to Melissa without me even realising. He has done it a few times since but only when he wants, which is typical.
Max is still being entirely tube fed but continues to try licking different foods. Today he sat up with the other kids at the snack table and was quite happy copying them with a strawberry & cheesy crisp - mmmmh quite a combination together :)
Thats about all to report for now - and thats a good thing :)
Katie xxx
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