Didn't update yesterday as it was an awful day and we kinda felt it when we got up....
...although today been much better :) Max had been getting very agitated on his ventilator esp as they have weaned him down on his sedation and pain relief drugs. We felt it was more agitated than struggling to breath as they had also turned down his ventilator in preparation to see if he would cope off of it - so as decided they took him off his ventilator at 2pm today. He has done very well indeed and apart from a small amount of oxygen through some nasal prongs he is doing it all on his own :) The only down side is that he was still quite upset all afternoon and would just drop off before starting to cry again. Rather than being sore I think he is just hungry as he has not had any milk in 2 days as his belly was bloated so as a caution they stopped his feeds. Looks like he has a tummy bug which is subsiding now so they plan to start his feeds again tomorrow at a very small amount, but its a start. All-in-all Max did extremely well today coping with everything they did although I can't say he didn't put up a fight!
We are aware its 1 step forward and 2 back but we feel he is heading in the right direction now and hopefully in the next few days he will be moved to the high dependancy (step down from intensive care).
Surgeons plan to get Max stronger in the next couple of weeks and then consider his operation just before Christmas.
x
...although today been much better :) Max had been getting very agitated on his ventilator esp as they have weaned him down on his sedation and pain relief drugs. We felt it was more agitated than struggling to breath as they had also turned down his ventilator in preparation to see if he would cope off of it - so as decided they took him off his ventilator at 2pm today. He has done very well indeed and apart from a small amount of oxygen through some nasal prongs he is doing it all on his own :) The only down side is that he was still quite upset all afternoon and would just drop off before starting to cry again. Rather than being sore I think he is just hungry as he has not had any milk in 2 days as his belly was bloated so as a caution they stopped his feeds. Looks like he has a tummy bug which is subsiding now so they plan to start his feeds again tomorrow at a very small amount, but its a start. All-in-all Max did extremely well today coping with everything they did although I can't say he didn't put up a fight!
We are aware its 1 step forward and 2 back but we feel he is heading in the right direction now and hopefully in the next few days he will be moved to the high dependancy (step down from intensive care).
Surgeons plan to get Max stronger in the next couple of weeks and then consider his operation just before Christmas.
x
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