Sunday 11 July 2010

Max meets Kaden

Last Wednesday Max met up with another very special boy, Kaden. Kaden was also born with CDH and is now almost 3. I was put in touch by someone I had met in our surgery and couldn't believe it when we found out Kaden and his family only live 3 streets away! It was so lovely to talk with Kaden's mum and her understand everything we had gone and continue to go through. Kaden is doing wonderfully and even eats and drinks a small amount although is predominantly fed through his g-tube. He showed it off to Max and seemed quite pleased to meet someone else with one, he even asked if Max has a 'tubie', it was so cute. We are going to keep in touch as it really seems Max is following the same path as Kaden and if he is where Kaden is now down the line we will be delighted :)

Max is trying so hard to sit up, physio have given us some more exercises to try with Max as he is still a bit behind his milestones but getting there. He still has a very strong preference to his left side so his head is still a little flat but we are trying to have him sleep on his side during the night to help with this.

We are off to Ireland for a friends wedding next Friday and Max is having his first nights away from us staying with his granny and grandad - i'm so nervous but not to do with him being with my folks as they will do briliantly - just being away from him for 3 days! Still, will be good for him and us to have a change.

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