Physio Progress - Gold Stars!!!

On Monday we had an appointment with Max's physiotherapist, Maureen, at the RACH. 2 weeks ago he was making little attempt to sit up and still had a strong preference to his left side but he is now sitting for short periods unaided (when he wants to that is!) and now passes toys from his left to right. We are delighted with his progress as I thought it would be a long time until he even attempted to sit up :)

Maureen has asked if we will help out some of her post grad students at RGU tomorrow. She has invited 5 mums with babies who have had a traumatic start and are at different levels of development for the students to ask questions about in group sessions. There is going to be a baby girl there who also has CDH so it would be good to speak with her mum and i'm sure share similar stories.

Picture of Max and his daddy, in his Bumbo learning to sit up.

Max at the beach

Today we went to the beach seeing as the weather was nicer than forecast - it was still windy but quite warm and we played in the sand before heading back to the car quickly as the rain came on (typical!). Max has been retching a lot less since he went back on to his continous feed over night so fingers crossed it continues to go well. So far we only have 1 appointment next week at the hospital and the rest are planned for a couple of months away - so far so good.

Max meets Kaden

Last Wednesday Max met up with another very special boy, Kaden. Kaden was also born with CDH and is now almost 3. I was put in touch by someone I had met in our surgery and couldn't believe it when we found out Kaden and his family only live 3 streets away! It was so lovely to talk with Kaden's mum and her understand everything we had gone and continue to go through. Kaden is doing wonderfully and even eats and drinks a small amount although is predominantly fed through his g-tube. He showed it off to Max and seemed quite pleased to meet someone else with one, he even asked if Max has a 'tubie', it was so cute. We are going to keep in touch as it really seems Max is following the same path as Kaden and if he is where Kaden is now down the line we will be delighted :)

Max is trying so hard to sit up, physio have given us some more exercises to try with Max as he is still a bit behind his milestones but getting there. He still has a very strong preference to his left side so his head is still a little flat but we are trying to have him sleep on his side during the night to help with this.

We are off to Ireland for a friends wedding next Friday and Max is having his first nights away from us staying with his granny and grandad - i'm so nervous but not to do with him being with my folks as they will do briliantly - just being away from him for 3 days! Still, will be good for him and us to have a change.

Dunkeld Holiday

We went on our first proper break away last weekend to Dunkeld in Perthshire. I was certainly in need of the break, especially as whilst packing in the morning Max fell off the bed and in my panic to pick him up I pulled out his gastrostomy tube! I felt awful but remembered in my new panic to plug the hole and call an ambulance. Max was very calm by the time they arrived and I felt like a bit of a fraud! Once at hospital, they put water back in the balloon and checked Max had not banged his head etc - we were home an hour or so later and on our way a few hours after that. We had a great time and Max loved going to the pool everyday and getting to stay up a bit later, he was full of beans!